Personal Genomics, Personalized Medicine, & You

MLA Course
Listing Archived: Wednesday, December 31, 1969

Primary contact information...
University of Pittsburgh Health Sciences Library System
Falk Library 200 Scaife Hall
3550 Terrace St
Pittsburgh PA , 15261
United States
Carrie Iwema is the primary contact.
Phone: 412-383-6887
Resource URL: http://www.hsls.pitt.edu/molbio
Region: Mid-Atlantic

Description: Advances in DNA sequencing technologies have greatly reduced the cost of whole genome sequencing and created fascinating new areas of study—personal genomics and personalized medicine. Empowered by recent technological advancements, scientists now have the ability to rapidly compare genetic alphabets of groups of people who show a particular trait with those that don’t. Direct-to-consumer (DTC) companies use this information to offer genotyping technology relatively inexpensively to the general public. Access to your personal genome enables you to identify genetic risk factors or inheritable disease markers you are carrying and can help you and your doctor choose the appropriate medications, dosages, and healthcare strategies. This course will expose medical librarians to info they can bring to their patrons (consumers, researchers, and clinicians), including breaking news, available online resources, the role of social media, and health-focused genetic testing and analysis services provided by DTC retail genomic firms.

Experience Level: Beginning Plus
CE Contact Hours: 4
Professional Competencies: Health Sciences Information Services
Subject: Consumer Health, Electronic Resources, Evidence Based Health Care, Health Care Informatics, Outreach/Advocacy, Reference Resources & Services, Subject Specific Resources, Teaching/Instruction
Course Type: Face to Face

Educational Objective: By attending this class on personal genomics and personalized medicine, participants will be able to: •Understand what is meant by "personal genomics" and "personalized medicine" •Recognize the ethical, legal, and social implications of these concepts •Incorporate the information provided into their personal and professional lives •Continue learning by reading relevant blogs and publications •Develop and/or supplement library-based services and resources for consumers, researchers, and/or clinicians

Agenda:

(15 min)Class introductions (who, where, why taking class) 
(5 min)	Class outline
(30 min)Background lecture (definitions of terms, timelines, basic genomics intro, videos)
(45 min)What is Personal Genomics? (testing rationale, DTC overview, regulations, social media, ELSI)
(25 min)Small group brainstorming of case studies and class sharing of results

(15 min)Break

(35 min)What is Personalized Medicine? (4 P's, challenges, GINA, pharmacogenomics)	
(20 min)What does this all mean for You? (personal and professional impact, keeping up to date)
(25 min)Small group brainstorming of ways to incorporate into library services and class sharing of ideas
(15 min)Wrap-up discussion and final questions
(10 min)Evaluation

Need for This Course: Despite the promise of personal genomics and personalized medicine for improving treatment practices and overall health, there is active debate in the public and within the medical profession about the appropriateness of their use. In this Genomic Era, it is important to consider the ethical, legal, and social issues and for medical librarians to educate themselves and their patrons about these topics.

The instructional methods used include Lecture, Demonstration, Slides, Learning Videotape, Discussion, Brainstorming, Sharing/Self-disclosure, and Case Study.

Participant Materials: A printed packet containing the slides, term definitions, case study examples, and recommended resources will be handed out at the class. The class materials will also be available online. Materials will include the PowerPoint slide show, recommended readings, websites and blogs, digitized results from the brainstorming sessions, and related pertinent information. A recommended reading list can be emailed to registrants prior to the class.

Facility Requirements: Computer with Internet access and Firefox web browser for the instructor (PC preferred). Instructor’s computer linked to projector and connected to external room speakers. Flip-boards w/markers (1 for every 4 students). If available, iClicker set-up for anonymous, immediate Q&A feedback/discussion. If wifi is available, students are encouraged to bring personal laptops, iPads, etc.

Additional Evaluation: Evaluation will be carried out using a pre-test/post-test evaluation approach. An anonymous web-based course expectations/prior knowledge survey via Survey Monkey will be emailed to all course registrants prior to the class, and an anonymous web-based course evaluation will be emailed after the MLA conference. This approach is to avoid taking up precious time during the actual class as well as allow time for participants to reflect on their responses.

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